Tuesday 20 September 2016

A letter to my 'other one' on her 2nd Birthday.

My youngest is rarely mentioned in this blog but yesterday I wrote her a letter and today I wanted to share it with you because while I bang on endlessly about the amazingness of my big girl, her little sister is busy being quietly fabulous in the background.

My darling baby girl,

Today you are two. There are so many things I want to say to you. Things that for now you won't really understand. I'm writing them down anyway so that you will know when you are older that I never lost sight of you. Not once.

You see I hear it. I know that you are more often referred to in relation to your sister than as yourself. You are the nameless ‘sister of’ just as I am the nameless ‘parent/guardian of’. Today at the hospital someone referred to you as my ‘other one’ and I could have cried. You’re not my other one, my darling, you are my wonderful, hilarious, clever, special you.

Instinctively you have always understood. You have an amazing ability to silence when you know we need to deal urgently with a medical need. You know where to pass sick buckets from, you understand (and recently have been trying to help with) tube feeding. You come running if I’m ever out of the room and you think she needs me. You pick up toys she can’t reach and retrieve dummies or chewies. 

At the tender age of two you understand that you can’t just take things off your sister the way most little sisters try. You know she can’t fight you or chase you and you know that isn’t fair. Amongst your first words was the gentle ‘there there’ I’ve heard you comfort her with so many times.
You have spent endless hours in hospital waiting rooms and at her bedside when things have been tough. You have gone home with Daddy or I while the other sleeps at the hospital.

I see you battling with jealousy and confusion and I understand truly I do. It’s impossible to explain effectively to you, at 2 years old, why when you throw food at the table it’s naughty but when she throws food it’s because her brain will not cooperate with her muscles.

That occasion when I turned my back and you hit her (not hard or with any venom) you had confessed before I even turned around and without me saying a single word you took yourself off and sat on the step and you cried. I cried too. I cried for you, for the magnitude of being the responsible baby sister, the big girl, the carer.

I forget, my baby, that you are so young. The kindness and patience you demonstrate far exceed that which could be expected of one so young. It’s a lot to take on being part of our team but you do it so beautifully.

I know that you love your sister, you tell me, you tell her. You often cry when we drop her at school because you miss her during the day. But today is about you and I want to promise you something, sincerely.

I promise that you will never come second in our house. You might feel like you do, you might see the time and energy it takes from us being your sisters parents but know that we are yours too.

It’s okay for you to need things, to need us, We’re here, we’re listening, always. I promise you that I will do everything within my power to ensure you don’t miss out on things or feel inhibited doing things she will never do. You never have to apologise for being yourself or achieving things or wanting attention. I want for you never to feel the weight of the responsibility you carry. Your Dad and I will carry your share.
We didn’t conceive you to be anything other than you. Just you. Not a carer, not an assistant, not your sisters voice or her hands or her legs. Just you.

Your big sister will always love you unconditionally, you are her hero, her friend, her partner in crime. You can just be her little sister and I will just be mum, and dad will just be dad and we will just be us.
I love you and am already more proud of you than you will ever know.

All my love
Mummy





Wednesday 7 September 2016

First Day of School

Today is a big deal. Today is Mojo's first day of school.

It's not so much the practicalities of her being away from me because she has attended the pre-school full time since last Christmas. In Mojo's eyes she is just going back to school with a new classroom and a new teacher.

I know different though. I know because I remember the meetings in early 2012 when I held her smiling and tiny in my arms while doctors talked about just 'going away and enjoying her while we have her'. I remember telling the mums in the parenting class I attended (to make up for the fact that it was 'unnecessary to do NCT', we wouldn't be taking a baby home) that it was unlikely that I would ever have to think about schools for Mojo because she was not expected to live that long. Retrospectively ladies, I really should apologise, that was painfully blunt and unnecessary, especially to say to other new mums, but I was at the stage where I was saying things like that out loud to remind myself not to get carried away!

So here she is polished and ready for her first day of school. The calendar is something we occasionally use at home to explain a busy day or make sure she doesn't get confused. Used in a photo like this I thought it looked a little bit like we were holding her hostage and providing proof of life.

Then I figured that's exactly what this is. It's proof of life, and a beautiful one it is too.